Monday, December 2, 2013

The Last Tube

Today the last tube preventing us from holding Lily came out of her!

Here's the nurse preparing to take out the tube.
 It was so wonderful to finally be able to hold her and ponder her precious life. A week ago when she was born, I felt so helpless knowing that my little girl was so close to death (technically, she did die, twice) and there was absolutely nothing I could do to save her. This afternoon while snuggling her in my arms, I felt like I could protect her from anything. She has been through so much in her short little life, but she is definitely resilient. The progress she has made this past week has been nothing short of miraculous. Please keep praying for Lily, because your prayers are working!

A very happy Momma holding Lily!

A very happy Daddy holding Lily!
The doctor we talked to today was one who saw her the day after she was born. He was very pleased to see her progress and was cautiously optimistic about tomorrow's MRI. He also told us that the recent EEG was good and there were no more signs of seizures, although she continues to be on anti-seizure medicine (which she is now taking orally--since the last tube that came out was for that purpose).

They momentarily took off her oxygen tube allowing us to see her face unobstructed.
 Lily was very responsive today, also. She was looking around and seemed to recognize Laura and myself. She even smiled a couple of times and was very relaxed when we were holding her. Her breathing is also getting better.

Look at those numbers!
Tomorrow is the second MRI, which should give us a better view of where Lily is at neurologically. Please pray that the damage that appeared in the first MRI is healed!

As a bonus, here is Lily from Daddy's point-of-view while holding her!


  1. Praying for Lily and for you guys. We serve a God who does miracles. Thank you Lord for the miracle of Lily.
    The Shroms xxxxx

  2. God bless you all. We are sending many prayers your way. She is beautiful!

  3. To see you and Laura hold Lily brought the biggest smile to my face and tears to my eyes. I'm praying for a full recovery for this beautiful little baby girl. God performs miracles and he's working a big one for her. Love you Danny and Laura.

  4. she is so absolutely beautiful and precious!! Praise God for how far she has come. I will be praying for her and for you all <3

  5. Praying for complete and total healing for you beautiful baby girl!!

  6. All my prayers going out to you and your family during this rough bump in the road right now... she is just beautiful and I hope everything works out. She is such a little fighter.... she can do it!!!!!!!!!!!!