Monday, December 9, 2013

Good News, Bad News

The good news is that Lily drank two full feedings (59ccs) from the bottle today! The doctor is going to continue watching how she does and if she can get to the point where she is doing this continually throughout all her feedings by the end of the week, then she won't have to get a g-tube. Please continue to pray for this.

Our Lady of La Leche, pray for us!

The bad news is what the neurologist had to say about the results of the MRI. He explained that of the three major parts of the brain (the brain stem, cerebellum, and the cerebrum), Lily's brain stem and cerebellum are fine. As far as they can tell, there is no damage to these parts. He said that these are the parts the baby uses early in life, which is why we see her doing well now. The cerebrum, however, which controls thinking, feeling, and moving, is completely damaged. So, the prognosis is that Lily will have cerebral palsy as she grows and reaches the stage where the cerebrum takes over. This means that she could have no speech or intelligence or ability to eat on her own or no use of her limbs, or all of the above or some of the above. We won't know until we reach the stages in her life where these are supposed to happen.

Lily needs a miracle. Please continue to pray that if it is God's will, Lily will be granted complete healing of her brain.

We are so thankful for Lily's life. This is very difficult news, nonetheless. Your prayers for our strength in all of this would be very much appreciated.

I have been begging you these last two weeks for your prayers for my daughter and I thank you more than I could ever say for your prayers for her. I am begging you once again to please, please continue to pray, to storm heaven with your prayers for a miraculous healing. I personally, unprofitable servant that I am, don't deserve to have my prayers answered, but for Lily's sake I beg. If you know anyone who you consider particularly holy, please beg them to pray for Lily. The prayers of a righteous man availeth much (James 5:16)!

Sts. Lillian, Faustina, and Our Lady of Loretto, pray for us!


  1. I will be praying and asking others to pray for her. I believe she will be healed.

  2. Praying for a miracle for your sweet baby girl. God is able!

  3. Oh my goodness, I am so sorry to hear such a devastating prognosis. I will keep praying for Lily's continuing healing and to give you and your family continued strength in coping. And I'm spreading the "prayers needed" word. God bless. Kate

  4. Oh Danny we won't stop praying.

  5. We're continuing to pray for you and your sweet girl.

  6. Continued prayers. Calling on the cloistered Carmelites in Lincoln.

  7. With so many prayers for Lily and her parents! May you all be blessed with the complete healing of Lily!

  8. Praying for you all

  9. I am currently reading the book "Nothing Short of a Miracle". It is truly inspiring to read of all of the healings that have happened in the past century. The really do happen - just keep storming the gates. We have been praying and will continue to pray.