Wednesday, December 4, 2013

Emotional Rollercoaster

With every bad news, good is not far behind.

Today Lily's bubble CPAP came off and she is now breathing entirely from the oxygen in the room! She is continuing to gain weight and is now at 6lbs. 14oz. (up 8oz. since birth). They attempted to feed her from a bottle last night, which they said went well, but she needs to get better at sucking for her to continue to be bottle fed.

The most exciting news we got this morning was that Lily has been downgraded from Level 3 to Level 2, which means that if she continues to improve then she will be out of the NICU and into the progressive care ward and one step closer to coming home!

Please pray that she comes home very soon and also continue to pray for her full recovery, especially the damage to her brain! Thank you!


  1. we're still praying. He is asking so much faith from you guys, to have to wait to 'know' for certain what she will be capable of/what damage was really sustained…what parent can even fathom going through this. And yet…we all live under so many assumptions where our children are concerned: assuming they'll be healthy, live long lives, hit normal milestones, when really none of us has the absolute assurance that this will happen. It's kind of like God has pulled the veil back for you guys and said, look, this all depends on Me in the end, so love her and trust Me. I wish I had that kind of faith, but at the same time I'm terrified to ask for it.

  2. Continued prayers from this house. Every day. The Lord hears and is faithful in all things.