The MRI results came back and they were not good. They found suppressed brain activity and severe damage to the brain from the lack of oxygen she experienced at birth. Because the MRI was done not long after she was brought up to full body temperature and she was on a lot of medication, they are not sure if that was a factor in the results. They are also not sure just yet if the damage they found is permanent or if it can be healed. They are going to do another MRI next week to see if her body at full temperature helps to get better results. Also, even though the first EEG showed no signs of seizures, the one they just did showed activity of seizures. They gave her medicine to stop the seizures and they are going to continue the EEG for another 24 hours. A little positive news: after having another platelet transfusion, her platelets are now up. She is also doing better at breathing and getting a step closer to breathing on her own. She even had a little bit of milk today which she tolerated well. They will give her some more tonight to see if her stomach can handle it. If it does, they will continue to give her more and more milk.
Today's news is really hard for us. We had been getting good news each day and our hopes were gradually rising. We still have hope, but today has been emotionally exhausting. We are also physically exhausted from having to drive back and forth to the hospital where Lily is at (we live about an hour and fifteen minutes away). We, Laura and I, really need your prayers as well. We need prayers for strength and continued trust in the Lord. We do trust Him, we do know that he works good in all things, but please pray for an even greater increase. Most importantly of all, please pray for Lily! Please don't tire of praying for her. She needs a miracle and only prayer (and fasting!) will bring it about. Please pray that the damage to her brain fully heals. Thank you.
Wednesday
Lily had a good night last night. She is now off the cooling blanket and they moved her from the lung oscillator to a ventilator, which she tolerated well. After the ventilator, she will be breathing entirely on her own. Please continue to pray! In the next day or two, Lily will have an MRI and another EEG to check the status of her brain. We pray that there is no damage or signs of seizures!
Tuesday
As of this morning there is no big news, except to say that she hasn't had any setbacks, which is always good news. It appears that her swelling has gone down a bit. This evening at 5:30pm, they will take her off the cooling blanket and slowly start to warm her body up to normal temperature within the next eight hours. Then they will do an MRI to see how her brain is doing and how her other organs are. Please keep praying that her brain is okay and that she makes a full recovery! All of your prayers and support are working and we are incredibly thankful for them.
Monday
Update 2
The doctor also told us that they did not find any bleeding in her brain! Oh and on her last diaper change, Lily had a full diaper of pee, so the kidneys are working strong. Please keep the prayers coming!
Update 1
We just talked to the doctor and so far everything compared to yesterday is positive. Lily's heart and lungs are looking much better. She is breathing more and more on her own and her platelet count is up. The EEG results showed no signs of seizures. We still don't know what the long term effects of the loss of oxygen she experienced at birth will have on her brain. Hopefully we will know more when they take her off the cooling blanket (see here http://www.chkd.org/Patients/
Sunday
Update 2
Today was a more promising day than yesterday. Lily is making small, but significant progress. We still don't know the extent of her injuries and she has a long way to go. Please, I beg you, keep your prayers coming! They are working. Both Laura and I are extremely touched and grateful for the outpouring of support for our little girl. Your prayers keep us going in this incredibly trying time. Please feel free to encourage others to pray as well, whether it be a simple request or sharing one of my status updates. The more prayers the better!
Update 1
Keep praying for a miracle. Lily was born yesterday by an emergency c-section and had lost almost all of her blood. She had absolutely no color to her when I first saw her. Also, her heart wasn't beating and they had to resuscitate her twice. Many of her organs have taken a hit and we don't know yet the damage, if any, to her brain. They have her on a cooling pad which helps prevent further damage. We just saw her and she is getting a lot more color. She is more responsive this morning and even opened her eyes. The doctor said that she improved a little bit last night and that the next 24 hrs are crucial. She is walking a tightrope right now. Please continue to pray!
Saturday
Lillian Faustina Maria was born by emergency c-section at 1:37pm at 36 weeks and 6 days, after the placenta detached from the wall of the uterus.
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