At 1:37 pm on November 23, 2013, Lily was dead.
At 1:37 pm on November 23, 2014, Lily is alive!
This year has been heart wrenching and beautiful. It has been pretty much exactly the opposite of what we expected it to be on November 22nd last year, yet a complete blessing, after what happened on the 23rd.
We’ve learned a lot of medical terms, met a lot of doctors, learned a lot about ourselves, our children, and our family as a whole.
We have been blessed with meals, childcare, house cleaning, Christmas presents, money, time, and prayers. We are so thankful for all of you who have cared for us, the other kids, and Lily.
We don’t know how many days, weeks, months, or years Lily will have with us. We know that every day we have with her is a blessing, and that her worth is not dependent on what she can or cannot do.
Many thanks again to the doctors and nurses that saved Lily’s life last year, and those that continue to care for her.
Though we were warned that she would be basically vegetative…she is anything but. This little girl has strong opinions, the best smile, tries hard, and loves loves loves.
Happy Birthday, sweet baby! We love you so much it feels like our hearts might burst!
St. Lillian, St. Faustina, Our Lady of Loreto, and her Holy Angel, pray for her!
And though she be but little, she is fierce.
- William Shakespeare, A Midsummer Night's Dream
