This month Lily has started having two different kinds of seizures, along with the little jerky ones she has everyday. One of them has her leg muscles tighten and her feet turn into each other. It happens quickly and in a cluster of 4 or 5 times, usually after she wakes up. It has only seemed to bothered her once so far. The other type is a lot more disconcerting, as she goes blank and rigid, and either holds her breath or can't breath, for about 15-20 seconds. This has happened three times so far, again, not long after she wakes up from a nap. A trip to the ER and a call into her neurologist, and her anti-seizure medicine has been upped again. When we brought her home, she was on .51 mL, now she's up to 2.7 mL. There is going to be talk about adding/switching medicine when we meet with the neurologist next Friday.
So- today starts a novena to St. Jude, patron of Hopeless Causes and Desperate Situations. Would you join us in praying and asking for Lily's seizures to stop? All the prayers can be found here, and you can sign up for reminder emails.